View comments by: Most Recent - first / last | Most Popular - first / last | Replies - hide / show

Fibromyalgia in the over 50s

I'm sure that there are among our members, some who are suffering fibromyalgia/ME/CFS. I'd like to start a conversation thread. Let's share how we cope as seniors. I'm 64, female and widowed. I live in Somerset. I've had fibromyalgia most of my life. I take a cocktail of drugs for the pain and trouble sleeping, and for my misbehaving bowels and bladder. (If you have this too, you know who you are). I take natural remedies too. I have a part time carer, although thank goodness I am still able to drive my faithful car. Ok folks, over to you! Look forward to sharing.


Created By on 31/01/2016

Not a member?

You need to be a member to interact with Silversurfers. Joining is free and simple to do. Click the button below to join today!

wpshark
26th Feb 2016 13:59:21
0
Thanks for voting!
Hi. I care for my wife 24/7 and she has severe Fibro (as well as Bipolar/Schizoaffective Disorder and Osteo).
The fibro can be extreme and keep her in bed for days/weeks. She is now right in the middle of a 10 day pain fest.
The trouble is that she cannot take pain medication as it reacts with her Lithium tablets. I would appreciate any advice on what pain meds are effective for your fibro
It just gets me that this idiotic government is punitively taxing us with the Bedroom Tax even though we have submitted medical proof that we cannot share a bed as any touch is excruciating.

By the way she is 61 and I am62
Response from Vantodder made on 22nd Oct 2016 11:30:47
Hello Wpshark, I also care for my wife 24/7 she has Fibro as well as parkinsons and COPD. Due to interaction with her medication the only medication our doctor will prescribe is paracetamol four time a day. Some doctors are now advocating the use of cannabis but at the moment its not available l
Cturner
17th Sep 2020 15:30:54 (Last activity: 17th Sep 2020 15:44:31)
0
Thanks for voting!
Hi, my name is Christine, and I have been suffering from fibromyalgia for at least 30 years. It is so debilitating. I was wondering if anyone has any advice on coping with the disesase, what to eat or not to eat or what to take naturally to help ease the pain.
Response from Sally - Silversurfer's Editor made on 17th Sep 2020 15:44:31
Hi Cturner,

Welcome and many thanks for your first comment in our Forum.

If you already know your way around, then we will leave you to it.

If you are looking for some lively discussions, head on over to the Forum homepage to see what's trending right now and feel free to join in the discussions, with all our friendly members, perhaps ask a question or even start your own post.

jeanymay
22nd Oct 2016 12:35:12 (Last activity: 22nd Oct 2016 17:33:18)
0
Thanks for voting!
Hi Kari,

I was diagnosed over 4 yrs ago with Fibromyalgia CFS/ME, and I find it so frustrating. It has changed my whole life. I also have Agorophobia, IBS, reflux, panic attacks and anxiety.

I have been very active all my life, and now I can only do little bits at a time, and rest inbetween. I lost a good job because of this and at the age of nearly 60 it is very unlikely I will ever work again, as my conditions are getting worse. It's a struggle to get out as not only am I battling with agoraphobia but also pain & terrible fatigue.

Nobody understands because they think if you look ok then your having yourself on, or worse "Oh isn't that what was called Yuppy Flu in the 70s It's all psychological" I just wish these people could have it for a month.

At times I feel 100 years old, and struggle to get out of bed screaming in pain. I take amitriptyline to help me sleep, but pain killers are ineffective and cause stomach problems.

Even doctors don't understand or have any answers.
Response from jeanymay made on 22nd Oct 2016 17:33:18
Thanks for comment Dollie. I would be interested to know more. Private chat if its better for you.
wpshark
5th Oct 2016 18:20:21
0
Thanks for voting!
A pity that we rarely visit this site and are therefore not always aware of posts. I would like to suggest to the moderators that they create a notification system by email so that we know when someone has posted on a forum we are involved in.
redfox
14th Sep 2016 05:44:10
0
Thanks for voting!
DEAR KARL
you may like to know that there is an organization that helps people, with our complaint they also run a web site FIBROMAYALGIA UK they have a branch that meets regularly in taunton although im male i suffer from polmyalgia which affects the muscles in the neck and shoulders with stiffness sometimes you cant even get out of bed the contact for. more info is MRS W Morrison 1 Elworthhy
Drive,Wellington TAUNTON TA219AT i hope this information is of help to you as you are aware this also affects your sleep pattern im on steroids and take predislone every day im 76 single as my partner has recently been taken into a home for another complaint i hope you find this helpful
yours kevin
[deleted]
13th May 2016 09:48:34 (Last activity: 14th Jun 2016 21:36:35)
0
Thanks for voting!
[deleted]
Response from wpshark made on 14th Jun 2016 21:36:35
So guess what? Our application for PIP was refused OUTRIGHT. Despite medical proof over a period of 3 years and letters from 3 GP's and 4 Psychiatrists.
Wrote to my MP and Capita will now re-assess.
BUT...we still have to do the re-consideration letter and the appeal if that does not work.
This government has seriously screwed everyone who is in need.
stillhere
23rd Apr 2016 02:29:43
2
Thanks for voting!
HI. I'm new here but not new to FM/CFS. I'll be 62 in a couple of weeks and for me it began during chemotherapy for the breast cancer I got for my 39th birthday...so this is a rough time of year...ok...it's all rough lately. I'm completely alone and was hoping to find someone similar to talk with. I am still trying. I exercise and eat as well as I can while struggling just to keep the roof over my head on a tiny SS Disability. When I lost my other small income my only son chose to look the other way, turn us into strangers after I had to ask him for help buying food so wow do I feel alone now. Still trying to wrap my head around that one. Don't mean to whine and I'm actually not looking for a whinefest...just wishing I had someone/a friend around my own age to talk to about life with FM, life in general, and maybe even "the big questions." Living/being alone 24/7 wasn't anything I saw coming, even with the illness etc.
laffy54
3rd Feb 2016 21:50:20
1
Thanks for voting!
Hello Kari, have only just started on silversurfers and was interested to see your post about fibro,I am 61 and have been suffering from it for nearly 10 years ,I am very lucky to have a brilliant husband who tries to understand but I am sure gets fed up with this horrible co diction like I do ,like you I take different medication much to no avail I sometimes wonder if it does any good at all , I tried joining a support group but nobody seemed to have the same symptoms as me although they were very nice people we did not have a lot in common so I gave up.Sometimes I feel so angry that I have this stupid co diction and that my poor family have to put up with me I try to remain cheerful but is no always easy when you have wrotten periods .thanks for listening .hope you have a good day tomorrow and the next day.good luck.

Community Terms & Conditions

Content standards

These content standards apply to any and all material which you contribute to our site (contributions), and to any interactive services associated with it.

You must comply with the spirit of the following standards as well as the letter. The standards apply to each part of any contribution as well as to its whole.

Contributions must:

be accurate (where they state facts); be genuinely held (where they state opinions); and comply with applicable law in the UK and in any country from which they are posted.

Contributions must not:

contain any material which is defamatory of any person; or contain any material which is obscene, offensive, hateful or inflammatory; or promote sexually explicit material; or promote violence; promote discrimination based on race, sex, religion, nationality, disability, sexual orientation or age; or infringe any copyright, database right or trade mark of any other person; or be likely to deceive any person; or be made in breach of any legal duty owed to a third party, such as a contractual duty or a duty of confidence; or promote any illegal activity; or be threatening, abuse or invade another’s privacy, or cause annoyance, inconvenience or needless anxiety; or be likely to harass, upset, embarrass, alarm or annoy any other person; or be used to impersonate any person, or to misrepresent your identity or affiliation with any person; or give the impression that they emanate from us, if this is not the case; or advocate, promote or assist any unlawful act such as (by way of example only) copyright infringement or computer misuse.

Nurturing a safe environment

Our Silversurfers community is designed to foster friendships, based on trust, honesty, integrity and loyalty and is underpinned by these values.

We don't tolerate swearing, and reserve the right to remove any posts which we feel may offend others... let's keep it friendly!