A New Year with Heart Valve Voice

The new year is always a great time for reflection.

For Heart Valve Voice, we looked back on 2017 with a great feeling of accomplishment. While we still have a lot of work to do in raising the profile of Heart Valve Disease and making the symptoms and treatment options common knowledge amongst the UK public, this past year we took some big steps forward in raising awareness of valve disease and tackling the inequalities of diagnosis and treatment across the country.

As part of our busy 2017, we attended numerous conferences all over the UK and Europe where we rallied the support of clinicians and professionals in the medical community as well as spread the word about our work. We also held policy meetings, hospital events, completed our first cycle ride from London to Paris, walked across the top of the O2, lobbied in parliament, worked with NHS England and continued to build our valuable network of patients and ambassadors.

Now that we have entered 2018, we are looking forward to another busy year full of events, campaigning and even more networking. We have already kicked off and started planning for a couple of major events this year including our National Photography Competition – Patient Portraits: A New You (which you can still enter here) and the upcoming European Heart Valve Disease Awareness Day that will bring together patient organisations from all over Europe to help raise awareness of valve disease.

This year will also be about our patient ambassadors and volunteers, celebrating them and encouraging others to participate. Some of the key events that we are planning that will include our patients and volunteers are a climb to the top of St Paul’s Cathedral to kick of World Heart Month on the 1st of February and we will be bringing back our cycle ride from London to Euro PCR in Paris again with the hopes of getting even more patients involved. The year ahead for our Patient Action Group will also be an exciting one as we develop new patient resources and hold a Patient Congress.

Or patients, ambassadors and volunteers are integral to important work that we do at Heart Valve Voice and we are always looking for more people to get involved whether it be joining our cycling team, helping at our testing events at Lancashire Cricket or simply sharing their story and experiences of valve disease, there is always something to get involved in. There are no prerequisites for volunteering with us, meaning you don’t need to have had valve disease, you just need to be passionate about raising awareness.

If you or anyone you know is looking for some exciting events to get involved in this year or an exciting cause to support please check out our website and get in touch!

Here is a great video summary of our very full 2017:


Have you got a health question?

We've teamed up with AXA PPP healthcare to bring you articles, information and tips from their clinical teams on a wide range of health topics. And if you have a question of your own, their, "Ask the Expert" service allows you to ask the team of friendly, experienced nurses, pharmacists and midwives about any health topic and they'll get back to you with an answer as soon as they’re able.* So if you have something that’s been bothering you, whether it concerns you or someone close to you, don’t hesitate to get in touch.

Click below to submit your query online.


* Nurses are available 24/7, 365 days a year. Midwives and pharmacists are available Monday to Friday, 8am to 8pm; Saturday, 8am to 4pm; and Sunday, 8am to 12pm.
Actual response time will depend on the nature of your enquiry and availability of appropriately qualified experts but the team will always aim to get back to you within 24 hours.
Please note that our Expert Help services are there to offer health information and support. They do not diagnose or prescribe, and are not intended to be a substitute for professional medical advice given in the context of an individual consultation.


Leave a Comment!

Not a member?

You need to be a member to interact with Silversurfers. Joining is free and simple to do. Click the button below to join today!

Click here if you have forgotten your password

Community Terms & Conditions

Content standards

These content standards apply to any and all material which you contribute to our site (contributions), and to any interactive services associated with it.

You must comply with the spirit of the following standards as well as the letter. The standards apply to each part of any contribution as well as to its whole.

Contributions must:

be accurate (where they state facts); be genuinely held (where they state opinions); and comply with applicable law in the UK and in any country from which they are posted.

Contributions must not:

contain any material which is defamatory of any person; or contain any material which is obscene, offensive, hateful or inflammatory; or promote sexually explicit material; or promote violence; promote discrimination based on race, sex, religion, nationality, disability, sexual orientation or age; or infringe any copyright, database right or trade mark of any other person; or be likely to deceive any person; or be made in breach of any legal duty owed to a third party, such as a contractual duty or a duty of confidence; or promote any illegal activity; or be threatening, abuse or invade another’s privacy, or cause annoyance, inconvenience or needless anxiety; or be likely to harass, upset, embarrass, alarm or annoy any other person; or be used to impersonate any person, or to misrepresent your identity or affiliation with any person; or give the impression that they emanate from us, if this is not the case; or advocate, promote or assist any unlawful act such as (by way of example only) copyright infringement or computer misuse.

Nurturing a safe environment

Our Silversurfers community is designed to foster friendships, based on trust, honesty, integrity and loyalty and is underpinned by these values.

We don't tolerate swearing, and reserve the right to remove any posts which we feel may offend others... let's keep it friendly!