Walk a mile for heart valve disease
Heart Valve Voice is the UK’s dedicated heart valve disease charity.
As a patient group, the lived experience of our patients is at the centre of all that we do. With our team of patient advocates, we are committed to raising awareness and improving the diagnosis, detection and treatment of valve disease, to ensure that every future patient receives the best treatment and returns to a good quality as quickly as possible.
Heart valve disease is a condition affecting over one million people over the age of 65 in the UK. It is caused by wear, disease or damage to one or more of the heart’s valves, affecting the ﬂow of blood. Despite its prevalence, Symptoms, including shortness of breath, tiredness, chest pain and dizziness, often go unnoticed or are mistakenly put down to the ageing process.
Symptom recognition is therefore key. We have found that many patients modify behaviour and adjust their life instead of recognising that something is wrong. This is why our Mile Walk campaign is so important. By walking one mile every month we want to draw attention to subtle changes in health. With each mile we walk together we can raise awareness of the symptoms of valve disease and help improve detection and diagnosis of the disease.
So, on the 20th of every month, get your family, friends and a pair of walking boots and start your Mile Walk for heart valve disease. Make sure you tag a picture of yourself on your walk with the hashtag #MileWalk – and remember to like, share and comment on any other #MileWalk posts you see.
Although a serious condition, the good news is that heart valve disease is treatable if diagnosed early. There are a variety of effective treatments available for heart valve disease patients, including valve repair or replacement. Quality of treatment and care is a key component in our policy drives. In 2019, Heart Valve Voice launched our Gold Standard of Care, where we mapped out a ‘gold standard’ for the diagnosis, treatment and management of heart valve disease. We want to ensure future all patients return to a good quality of life with their friends and family as quickly as possible.
Heart Valve Voice have a busy schedule of campaigns to help us raise awareness of valve disease and effect change in policy. You can read our Heart Valve Voice Magazine and find out more about our work and get involved in our upcoming campaigns.
As well as details on upcoming events our magazine shares stories and updates from our patients on their valve disease experiences. Like Ian Berry, who six months post-op is back on his bike and doing what he loves again.
Our patients’ lived experience plays a central role in our awareness and policy drives, if you or anyone you know would like to share a story visit our website and get involved.
Have you got a health question?
We've teamed up with AXA PPP healthcare to bring you articles, information and tips from their clinical teams on a wide range of health topics. And if you have a question of your own, their, "Ask the Expert" service allows you to ask the team of friendly, experienced nurses, pharmacists and midwives about any health topic and they'll get back to you with an answer as soon as they’re able.* So if you have something that’s been bothering you, whether it concerns you or someone close to you, don’t hesitate to get in touch.
Click below to submit your query online.
* Nurses are available 24/7, 365 days a year. Midwives and pharmacists are available Monday to Friday, 8am to 8pm; Saturday, 8am to 4pm; and Sunday, 8am to 12pm.
Actual response time will depend on the nature of your enquiry and availability of appropriately qualified experts but the team will always aim to get back to you within 24 hours.
Please note that our Expert Help services are there to offer health information and support. They do not diagnose or prescribe, and are not intended to be a substitute for professional medical advice given in the context of an individual consultation.
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