My wife and I grew up together from about ten years of age, had fifty eight years of married life during which I spent twenty nine years as her Carer, she had Parkinsons, then Lewy Bodies and finally cancer which took her from me nine years ago. I then married someone that I had known for many years, she had been a Carer for her husband who suffered for many years with Alzheimers, we have now been married for five year but sadly just over two years ago she was diagnosed with Alzheimers. The thoughts of enjoying ourselves and making up for our lost years was taken away, for me normal service resumed. The Cared for are to be pitied and need our sympathy for their condition but in reality the Carer who could be fit, agile, and fully functioning is the one most robbed and deprived.
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I put my husband after 7 years, in assisted living in May. It was the hardest thing I've had to do. I feel so lonely. He sits in his chair and eats. I want to know someone else like me ...thanks
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About to be locked down, no escape from my 92 year old husband who is becoming increasingly unkind. They say words can’t hurt, change the subject or walk away. But we are stuck again. I have lovely friends and we go for walks and out for coffee. My husband is well but limited in what he can do. Going out is frightening. Where is the help? My children are all abroad and can’t return because of the virus, they help by chatting on FaceTime. My brothers live nearby but my husband is rude and insulting to my relatives. There must be lots like me, horrified at the idea of shut down although I have plenty to be thankful for really. I live in a lovely spot, good walks, good health and a big garden to look after and kind friends. Any suggestions?
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I’ve written a little non Infectious riddle

The dreaded disease

There’s a disease going round, but you can’t be infected And no matter how you try, you can’t be protected It’s not a Corona or a Corvid 19 It can’t be detected and it can’t be seen It’s nasty and horrible and creeps up on you You can’t catch it and bin it within a tissue There’s over 400 forms and it’s world wide No one calls it a pandemic or a national disaster But to those living with it’s a true mind blaster If we could only stop it by washing our hands Our loved ones might still be here, DO YOU UNDERSTAND. CAN YOU TELL WHAT IT IS YET ? I lost my wife a while ago, she is in a world only she knows. I am not afraid of Coronavirus, in fact for her it could be a blessed release.
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My Mum was lost to Alzheimer's 5 years ago and I just can't understand why I never asked her to let me capture her stories and favourite memories on film BEFORE this vile illness took hold of her. After she was gone, I beat myself up for having NOT been brave enough to say 'Mum, I want to capture all of your favourite stories and memories from when you were younger, your words of wisdom, your voice, your smile your sense of humour, so that my grandchildren can experience just what an amazing mother and grandmother you were. If anyone finds themselves or a family member diagnosed with Alzheimer's, please please please, make sure you aren't left with the same regrets.
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I would like to discuss home care experiences - both positive and negative
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This is the theme of an early evening event taking place at Notcutts Garden Centre on the 28th of November. Dr Marilyn Glenville, the author of 'Natural Solutions for Dementia and Alzheimers' is one of the expert speakers. You will also enjoy some light bites prepared by Tonbridge super food chef, Ben Sulston. More details of this event, run in association with the Primary Care Neurology Society, can be found at www.p-cns.org.uk.
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Hello I am another newbie, and find myself on here due to a very unwanted life change, and needing the stimluation of others in a world currently dominated by a Dementia Nursing Home. The problem with Dementia groups is that is the only topic many of them discuss, and I am not in that world on a personal level, ( other than the love for my husband ) and still need a life of my own. Anyone feel the same ?
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Dementia is a cruel disease … there are a range of care options to be considered when a dementia sufferer can no longer be totally self sufficient. What care packages have you considered or implemented when a parent or loved one can no longer cope alone?
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Today is World Alzheimer’s day (21st September 2012) Has your life been touched by this terrible disease in any way? Have you had first hand experience with a spouse, a parent, or a friend? Can you share any experience that would be helpful to other Silverhairs friends?
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